RESPECT – CALL YOURSELF WHAT YOU WANT

I once worked for the Mentally Retarded Citizens Welfare Association and I can clearly remember when Scope was the Spastic Society. There were ‘wogs’ and ‘chinks’ at my school. At that time I thought these titles and words were wrong. They were disrespectful and enabled generalisation and assumptions about all who fell under those banners. At university it was hammered into students that ‘person first and description second’ was the only polite way to go. Terminology was changed to ensure that words which had been appropriated as abuse were no longer used. ‘A person with an intellectual disability’ or ‘a person with Cerebral Palsy’  were considered the correct terminologies.

So it has been somewhat challenging to see the development and revisiting of how we should refer to people within the community of the neurodiverse. The terminologies ‘autistics’ and ‘autistic people’ have become more common in language now, particularly within the community of people with autism. They argue that the term ‘person with autism’ likens the autism to a handbag that can be picked up and put down as required, rather than an acknowledgement that autism is a description of neurodiversity. It’s not bad nor good, it just is.

The issue is when words are imbued with other meanings. When words become culturally appropriated as terms of abuse, the use of such terms in polite society is enough to cause the ‘pearls to get a good clutching’. Retarded, spastic, wog, chink are (or were) terms used to put people down. The only reversal of that has been the appropriation and redefinition of the term ‘wog’ which has been reclaimed by people of southern European descent and worn as a badge of honour and distinction.

Perhaps ‘autistic’ is yet to gather abusive status.  I do know of one young lady who was suspended from school for delivering a right hook to some kid that called her a ‘stupid autistic’ (was the punch delivered for the ‘stupid’ part?).  Suspension? I think she should have got a medal … and a suspension!

Perhaps the people with autism are keen to develop the superpower notion of neurodiversity. Whatever it is, I think the important thing is RESPECT. Call yourself what you will, but that is your choice alone to make.

For a non-wog or spick, intellectually diverse, movement diverse, neurodiverse person I think I will call you by your name. You can call yourself what you want but I can only respond with your name (if I can remember it) or collectively as a group of people with superpowers/Xmen (or should that be Xpeople).

Food for thought

Cheers
Fred

THANKS FOR A WONDERFUL TRIP

Mel, a parent to three autistic teenagers and  Co-Founder of Different Journeys, has given a unique insight into the challenges of traveling as a family, and the value of traveling with that little extra support from Interchange Outer East. Whether it’s for a second pair of eyes, extra flexibility, someone to lend an ear, or a chance to have a night out without the kids, there are many advantages to joining an IOE overseas adventure as a family!

‘Traveling can be challenging yet exciting and it is a rite of passage which many people just assume everyone can access. However for many families who have children with additional needs, this can present many problems that actually prevents you from even trying to travel.

In 2017 we tried our first family holiday overseas by ourselves when we went to America. There was so much planning and preparation involved and we still couldn’t plan for every contingency. This becomes an added challenge for families, making what should be an enjoyable time, quiet stressful. In reflection this holiday was successful and we had a good time.

When the chance of a supported holiday came up, we committed with trepidation. We didn’t have total control – that was the job of Interchange Outer East (aka Fred). What if we didn’t get on with the other families on the trip? What if their children were better behaved than ours? These were just a few of the questions roaming around our heads.

We had to have our own meetings with Michelle from Spot on travel to ensure that all the needs of our children were met. I’m sure we were driving Fred mad with all the extra organisation etc.

So in the early hours of January 5th we arrived at Melbourne Airport with 14 other people. In fact, there were 6 diagnosed autistic people on the trip. There was excitement in the air and can I say when we arrived back home on the 20th January we were all still talking, laughing and planning our next trip together.

What did we learn as a family;

– There are more families out there with similar issues to ours, the journey doesn’t have to be so lonely if we all reach out and talk openly and freely;
– We had time to go and do our own thing if we didn’t want to go with the group. This included staying and just doing nothing at our hotel
– We could have support for the first time with the extra support that was offered on the trip. There were times we went out by ourselves as a couple, or with the other parents on the trip without children.
– There was safety in numbers if the children wanted to do things with the others in the group and we didn’t. It alleviated many an argument that would have previously occurred.
– We were able to feel included and supported and in essence not so alone
– We created positive, happy memories (except if you ask our daughter who was keeping notes on her family members and all the silly things they did)
– We were able to laugh with others and ourselves and strengthen existing friendships and create new ones.

The opportunity provided by interchange to have a supported holiday was amazing and very much appreciated. The support staff (Fred, Fay, Ryan, Sarah & Tom) were wonderful in the support, help, friendship & comradeship they provided. Nothing was a burden. To us they were just part of the holiday, not support workers.

Whilst we have been able to have successful holidays in the past in spite of all the work, preparation & stress that comes with planning a holiday for three ASD teens, we have never experienced a trip where we have been given so much assistance just to enjoy a ‘normal’ family holiday, with both the kids and with each other as a couple. To be able to relax by the pool or leave the kids in a motel room whilst we had a meal has been something we have rarely, if ever, done in the pas … what a revelation!!!!!

We can’t thank IOE enough for the chance to do this and are actively thinking about what other adventures Fred can take us on!!’

The Wheatfill Family

IOE SUPPORT WORKER ENEWS -SUMMER

The summer edition of the quarterly eNews for IOE Support Workers with information, news, ideas and handy hints.

WHAT’S NEXT – A CHRISTMAS MESSAGE

Sitting writing a Christmas or end-of-year piece of ‘wise’ thoughts it’s natural to reflect on the year that has just about passed. Unfortunately doing this at the end of the year does a disservice to everything that happened in the first 11 months. I figure it’s the same cognitive function that enables people to have more than one child. As time goes by it all seems fine. Perhaps it’s a function of age and I literally cannot remember what happened.

Reaching back into the, albeit murky, sands of time, it turns out lots of stuff has happened both the good and not so good. From an Interchange point of view, the year provided us all with the joys of NDIS, but also lots of new creative and fun adventures. From my perspective the inaugural carers retreat, the family camps, Sport 4 Fun, Boys 2 Men and the ASD leadership program have been high points of the year. It has also been a year when I have developed a new appreciation of working in partnership with other organisations that share interests and are focused on doing things that support people well. Different Journeys, The Misfit Project, Achieve2B, Carers Hub and Spot On Travel are a few of the organisations that I have worked with across the year.

So what is next? For Interchange it’s a constant process of working to improve the support we offer families, continue to create more and varied opportunities for people, and to revere the benefit of ‘niceness’ to people.  For myself, whilst I don’t make new year type predictions, I do like to think about what I want to do …

  • Be with the people I want
  • Improve, challenge, push myself
  • Learn about stuff
  • Invite Adventure
  • Keep my mouth shut – listen

It is the season when that spooky elf travels around the house and we prepare for a couple of weeks of gatherings of the clans. Whatever this time of year brings, I wish you all the happiness and joy that you  deserve. Be kind to yourselves and enjoy.

Fred

IOE NEWSLETTER – DECEMBER

Keep up-to-date. Read the latest news from IOE with the December edition of our monthly enewsletter.

RELAX AND REVIVE TO SURVIVE

‘Again another wonderful weekend away – child free therefore stress-free!  Thank you for all the behind-the-scenes planning and negotiating and prioritizing so our mums can have that so desperately deserved TLC luxury break away.

I think on the whole it equates to mission impossible:  trying to please  50 women !!!  However on behalf of the silent majority (some so overworked they could not find time to send a thank you)  whole-heartedly thank you!  Some of us simply hurtle through the merry-go-round of life – dreaming of the next IOE Mums escape weekends!  Roll on 2019!’

‘Woohoo, the weekend was awesome l am so grateful to be included and to be able to enjoy good company and a great venue l would otherwise not be able to afford plus a beautiful beachside location. Thank you so much.’

‘Fabulous weekend. I haven’t felt so relaxed (and understood!) for a very long time. The break was so needed and so appreciated.’

‘It was so much fun! Such a great bunch of chickie babes!’

Some of the feedback received after our recent annual Mothers Group weekend away.

This year we headed to the Mantra in Lorne. A perfect place to relax and unwind, which really is the main purpose of the annual break.

Lots of time to chillout, to walk and explore, to enjoy the luxury of browsing the shops child free,or just sit on the beach or in a cafe and chat. Simple everyday things for many but cherished opportunities for most of the ladies in the Mums group.  No having to look after anyone but themselves, definitely no cooking or cleaning, just eating and drinking and enjoying the fruits of others’ labours for a change. An added bonus was that the weather was perfect!

The more energetic took advantage of Mantra’s gym and indoor pool. On the Saturday afternoon we took a small group to a local sculpture park, then on to the magnificent Erskine falls – the 260+ steps to the bottom and then up again were well worth the considerable effort, as the falls were even more spectacular when viewed from their base. Final stop was Terry’s lookout with a superb overview of the ocean and the Great Ocean road.

Saturday night following dinner it was time for fun and games as our entertainment facilitators, Sarah and Ryan from Misfit Project, had us role playing individually and in ‘table teams’, dressing up, being silly and having loads of laughs. Great fun!

On the Saturday night Ryan asked ‘Stand up if this is your only weekend away in a year’  and quite a number of the ladies present stood up. Testimony to the value of the respite breaks and opportunities offered through IOE’s family support programs.

Relaxation, fun, socialisation, inclusion, support and understanding – the weekend had those and more to the max.

 

 

 

SUMMER BREAK MADE EASIER

In response to a number of requests IOE’s communication guru, Bec, has put together a calendar template to help families organise the busy summer holiday break. The lack of routine and the unpredictability associated with the break can be unsettling for some children and confusing for their hassled parents. The calendar will give a visual cue as to who is where and what is happening. It has been created in Powerpoint, which is readily available on the majority of computers and devices.

Bec has provided a few of the most commonly used icons/pictures at the side of the calendar. Simply drag or copy and paste these across to the calendar days to create your own schedule. You can customise your calendar by adding extra pictures of people or places of your own eg. Grandpa’s house can be changed to a picture of someone else, whether it’s grandparents, aunts, uncles or a support person, whoever the child will be staying with for the day, overnight or extended period of time. Just drag or copy and paste your images onto the calendar, resize and reposition them to the correct days. When you’ve finished print the finished pages, stick them on your fridge or wall and your holiday schedule is clearly there for all to see!

The calendar has been designed to be printed A3, but it also prints well as A4, if an A3 printer is not available.

The first couple of pages of the template are an example of how the calendar can be used. Please note the school term dates are not necessarily correct as these will depend on the school attended. A blank calendar (December and January) follows, ready for you to create you own version. Voila! An organised, easy to follow, hassle free look at what is happening over the holiday break , keeping everyone happy.

You could even get creative and modify the template for use throughout the rest of the year.

The images Bec has used are from Boardmaker. If you would like more like these, or require a bit of help with how to use the calendar, please contact her on 97585522 or bec.casey@ioe.org.au

 

IOE NEWSLETTER – NOVEMBER

Keep up-to-date. Read the latest news from IOE with the November edition of our monthly enewsletter.