RESPECT – CALL YOURSELF WHAT YOU WANT

I once worked for the Mentally Retarded Citizens Welfare Association and I can clearly remember when Scope was the Spastic Society. There were ‘wogs’ and ‘chinks’ at my school. At that time I thought these titles and words were wrong. They were disrespectful and enabled generalisation and assumptions about all who fell under those banners. At university it was hammered into students that ‘person first and description second’ was the only polite way to go. Terminology was changed to ensure that words which had been appropriated as abuse were no longer used. ‘A person with an intellectual disability’ or ‘a person with Cerebral Palsy’  were considered the correct terminologies.

So it has been somewhat challenging to see the development and revisiting of how we should refer to people within the community of the neurodiverse. The terminologies ‘autistics’ and ‘autistic people’ have become more common in language now, particularly within the community of people with autism. They argue that the term ‘person with autism’ likens the autism to a handbag that can be picked up and put down as required, rather than an acknowledgement that autism is a description of neurodiversity. It’s not bad nor good, it just is.

The issue is when words are imbued with other meanings. When words become culturally appropriated as terms of abuse, the use of such terms in polite society is enough to cause the ‘pearls to get a good clutching’. Retarded, spastic, wog, chink are (or were) terms used to put people down. The only reversal of that has been the appropriation and redefinition of the term ‘wog’ which has been reclaimed by people of southern European descent and worn as a badge of honour and distinction.

Perhaps ‘autistic’ is yet to gather abusive status.  I do know of one young lady who was suspended from school for delivering a right hook to some kid that called her a ‘stupid autistic’ (was the punch delivered for the ‘stupid’ part?).  Suspension? I think she should have got a medal … and a suspension!

Perhaps the people with autism are keen to develop the superpower notion of neurodiversity. Whatever it is, I think the important thing is RESPECT. Call yourself what you will, but that is your choice alone to make.

For a non-wog or spick, intellectually diverse, movement diverse, neurodiverse person I think I will call you by your name. You can call yourself what you want but I can only respond with your name (if I can remember it) or collectively as a group of people with superpowers/Xmen (or should that be Xpeople).

Food for thought

Cheers
Fred

WHAT’S NEXT – A CHRISTMAS MESSAGE

Sitting writing a Christmas or end-of-year piece of ‘wise’ thoughts it’s natural to reflect on the year that has just about passed. Unfortunately doing this at the end of the year does a disservice to everything that happened in the first 11 months. I figure it’s the same cognitive function that enables people to have more than one child. As time goes by it all seems fine. Perhaps it’s a function of age and I literally cannot remember what happened.

Reaching back into the, albeit murky, sands of time, it turns out lots of stuff has happened both the good and not so good. From an Interchange point of view, the year provided us all with the joys of NDIS, but also lots of new creative and fun adventures. From my perspective the inaugural carers retreat, the family camps, Sport 4 Fun, Boys 2 Men and the ASD leadership program have been high points of the year. It has also been a year when I have developed a new appreciation of working in partnership with other organisations that share interests and are focused on doing things that support people well. Different Journeys, The Misfit Project, Achieve2B, Carers Hub and Spot On Travel are a few of the organisations that I have worked with across the year.

So what is next? For Interchange it’s a constant process of working to improve the support we offer families, continue to create more and varied opportunities for people, and to revere the benefit of ‘niceness’ to people.  For myself, whilst I don’t make new year type predictions, I do like to think about what I want to do …

  • Be with the people I want
  • Improve, challenge, push myself
  • Learn about stuff
  • Invite Adventure
  • Keep my mouth shut – listen

It is the season when that spooky elf travels around the house and we prepare for a couple of weeks of gatherings of the clans. Whatever this time of year brings, I wish you all the happiness and joy that you  deserve. Be kind to yourselves and enjoy.

Fred

A TIME FOR KINDNESS

Too often there is a lack of inspiration, of humanity and of goodwill in today’s world.

World leaders lying – or at best obfuscating; the normalising and acceptance of human rights abuses; the climate going nuts yet the denial sycophants say nothing is wrong; un-civil wars creating massive humanitarian crisis; xenophobic rantings about people who are different … the list goes on. The template is that to get ahead in the world you have to beat down all opposition and appeal to the lowest ebb of thought. You have to be tough, yell and bully your way through or else ‘they’ will take advantage of you. We seem more and more willing to accept this behaviour and irrationality from people in the spotlight and each other.

So where do we turn to shed some hope and light?

Japan’s world cup soccer team.

Not only did they do really well on the field, they attracted world wide acclaim when, after they lost in the knockout stage, they tidied up their change room and left a note – in Russian – to say thank-you. The Senegalese team did the same through the group stage. After their group stage match both Japanese and Senegalese supporters were also seen picking up rubbish from the stadium terraces before they left.

It was a simple act of respect, yet it was reported across the world as some kind of quaint, strange thing to do. When doing something thoughtful, kind and pleasant is being seen as being exceptional we must stop and question what is going on. It is readily noticeable that people are more intolerant and less willing to accept mistakes or omissions. Yet this time of significant change and disruption is exactly the time to practice more random kindness. We should all take a lead from the ‘Blue Samurai’ and be thankful and kind to each other even during times of stress.

Cheers

Fred

Fred leading the Dads on 2017 weekend away

SUPPORTED FAMILIES ARE STRONG FAMILIES

Families are not easily definable. They can be all shapes, all sizes, functional, or not, bonded by blood or circumstance, they can be a given or created. It’s a connection we all have irrespective of the choices we make. They are important as they are the supports that help us become the person we are. In the vast majority of cases they are who we turn to in times of difficulty. The better able and equipped a family is to deal with adversity, the more likely the outcome for an individual will be positive.

Yet, they seem to be treated somewhat ambivalently in the current age where the individual is the focus of institutions across the country. Nowhere has this been more apparent than with the NDIS, where it seems at times that the family the person with a disability is connected to is ‘out of scope’ for consideration within NDIS supports. Family support is seen as the responsibility of other parts of the government or community. Unfortunately it is not apparent who is actively supporting families of children with disabilities. What has been clear is that some services that were previously available to families cannot be accessed once a person transitions to the NDIS.

Interchange aims to support families not only in the way they provide services but also in actually offering and running services to support family members of the person with a disability. Mums, Dads, siblings and the whole family are offered the opportunity to meet others and share the sense of collegiality and mutual recognition of a path less traveled.

Of all the family support services my favourite is family camp. They are an opportunity for families to come together and experience a ‘community’ where acceptance and understanding are freely given and opportunities for all are provided. For me family camp equals soccer, activity and sore legs from all the running and walking. What people get out of family camp is largely based on their approach and attitude. For some it’s relaxation, for others total madness. IOE has run two family camps so far this year – the first at Coonawarra and the second at the CYC camp on Phillip Island. We have played sport, swung, traversed, run relays, run tournaments, answered tricky questions, sung, danced, created, sung the national anthem, acted, improvised, canoed, swum and walked at night on the beach and in the forest. Sure there are the usual injuries – mostly on the dance floor – but most people walk away from family camp tired but in a happy space for a few days.

Family support services are important as they work to aid and assist the most important people for an individual with disability. NDIS services will come and go but, if we get it right, a person’s family will be there for a lifetime.

Fred – Interchange Outer East CEO

  • Today, 15 May, is International Day of Families an annual United Nations initiative which this year celebrates ‘Families and Inclusive Societies’.
  • It is also the start of  National Families Week. Held annually between 15-21 May, it’s a time to celebrate the vital role that families play in our Australian society.The theme for National Families Week is ‘Stronger Families, Stronger Communities’ which fits perfectly with IOE’s integral role of strengthening families through support.

Today, this coming week and throughout the year let’s celebrate families!

 

LET INTERCHANGE BE INTERCHANGE – EAT SAUSAGES!

The NDIS is here and it’s a revolution in the way support to people with disabilities is provided.

Everything has changed from processes and systems to thinking like a business. Choice and control has been wrestled away from institutions and given to the individual. Welfare is over and everybody with a disability shall be a consumer in the marketplace where businesses battle for the consumer dollar. You no longer have to be stuck with one agency, you can go where you want to get your services. Woolworths, Coles, Aldi, IGA or your local butcher – you can choose where you get your sausages and they all cost the same … for now.

So you make you choice based on:

  • availability – yes we have sausages
  • quality – these are lamb & rosemary…
  • the extras – garnished with a sprig of parsley
  • advertising – shiny on paper … still sausages
  • friendliness – didn’t realise butchers flirting was a big thing
  • loyalty – they have always had sausages
  • Extra costs – distance

From an agency point of view we ‘have to’ transform our business. Become lean, targeted, focus on areas we can make money, be modular, outsource, and my personal favourite, think like a business.

Following through on these ideas would transform not only our business but also our soul. If we focused on returns there would be no sibling support, family camps, mums and dads activities … no camps at all. Volunteer support would go, other services ended and we would be like every other ACME Inc. organisation out there finding out the cheapest way to provide a service that will provide a financial return.

I’m often wandering around mumbling and talking to myself about what strategy levers IOE needs to pull to ensure our survival , sometimes I just get grumpy, and then a young but wise soul said to me:

I don’t know what you are worried about, just let Interchange be Interchange, its good”.

So with a eye on fiscal responsibilities Interchange Outer East will continue to:

  • Provide services to the best of our ability
  • Be flexible and open to ideas
  • Start with a ‘can do’ attitude
  • Be transparent and honest in working with families
  • Be a friendly, welcoming and personable service
  • Find the best fit for your family in terms of service and people
  • Ensure fees are value for money and nobody misses out on service due to an inability to pay
  • Maximise fun, challenge and opportunity in all services

 

So you may have to wait, its not going to be exotic, definitely no parsley, but we will cook it, stick it in some bread, sauce it, serve it with a smile and you will have your sausage!